Co-Sponsor the Medical Nutrition Equity Act (H.R. 2501)

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Urge Your House Representative to Co-Sponsor the Medical Nutrition Equity Act (H.R. 3783)

Please help us continue to build momentum for the Medical Nutrition Equity Act by contacting your Representative and asking them to co-sponsor H.R. 3783. The reintroduction of the Medical Nutrition Equity Act (H.R. 3783) in the House of Representatives last week has positioned us at an ideal vantage point! We must use this momentum to galvanize Members of the House of Representatives to sign on as co-sponsors.

To make contacting your Representative easy we have provided a pre-composed letter that is ready to send! The only thing you need to do is add your name, and you’re DONE!

Feel free to customize the letter by adding your own personal story after "This issue is important to me."

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Support the Medical Nutrition Equity Act (H.R. 3783) today!

The Medical Nutrition Equity Act would help thousands of people with PKU and other metabolic disorders afford their lifesaving treatments - medical foods. H.R. 3783 would provide public and private insurance coverage for physician-prescribed medical formulas and low protein modified foods for children and adults with PKU and other inborn errors of metabolism. Requiring insurance coverage of medical nutrition will mean that families like your own won't have to choose between paying for medical foods or other necessities.

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Ask House Representative to co-sponsor H.R.2501

Subject: Please Co-Sponsor H.R. 2501

Message:

As a constituent affected by a rare metabolic disorder, Phenylketonuria, I am writing to ask you to cosponsor the Medical Nutrition Equity Act (H.R. 2501). This issue is important to me. There are currently 16,500 Americans living with Phenylketonuria (commonly known as PKU). PKU is a rare, inherited metabolic disorder that causes inadequate growth, developmental delays, intellectual disability, and behavioral disorders without treatment. The United States has screened newborns for PKU for over half a century and we have a treatment. The first line of therapy for PKU is medical foods. The medical foods required to treat PKU cost approximately $12,000 - $15,000 per year, which is far beyond the means of most PKU families. Unfortunately, patients often find that their insurance provider will not cover medical foods. Coverage denials force patients to seek alternative, and often costlier, treatments or go without treatment altogether. The Medical Nutrition Equity Act (H.R. 2501) would help thousands of people with PKU and other metabolic disorders afford their lifesaving treatments—medical foods. H.R. 2501 would provide public and private insurance coverage for physician-prescribed medical foods, medical formulas and low protein modified foods for children and adults with PKU and other inborn errors of metabolism. Requiring insurance coverage of medical foods will mean that families like your own won’t have to choose between paying for medical foods or other necessities. Please co-sponsor of the Medical Nutrition Equity Act so that patients with PKU and other metabolic disorders have access to their lifesaving treatments.

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Urge Your House Representative to Co-Sponsor the Medical Nutrition Equity Act (H.R. 3783)

Support the Medical Nutrition Equity Act (H.R. 3783) today!

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Other ways to help!

Stay Connected!

Urge Your House Representative to Co-Sponsor the Medical Nutrition Equity Act (H.R. 3783)

Support the Medical Nutrition Equity Act (H.R. 3783) today!

You can still help!

Other ways to help!

Thank You!

Stay Connected!